Penelope’s Law

Penelope’s pneumonia is slowly getting better. By yesterday evening, she didn’t need any oxygen while she was awake, which is great. We had to turn it back on once she fell asleep, but she needed less than she did the previous night. If the aspiration pneumonia was her only problem, we would probably be able to go home soon. But I have learned about Penelope’s Law: if something can be complicated, it will be. 

It turns out that Penelope also has a gastrointestinal infection- C. difficile. Sometimes kids with G tubes are more prone to this infection because their intestinal flora may be different. It causes abdominal pain and watery stools, both of which Penelope is experiencing. She couldn’t tolerate anything through the G tube yesterday, and she can’t go home until she has resumed her regular formula feeds through the tube. I don’t know when that will happen. I am trying to stay positive, and hope that maybe today she will be able to tolerate some Pedialyte through the tube and maybe we can have the formula feeds worked up by the end of the week. 

At any rate, she is being well cared for, and is certainly better than she was a couple days ago. Thanks to everyone who is sending messages of positivity and support. We are lucky to have such supportive and wonderful family and friends. 

Definitely in better spirits!

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One thought on “Penelope’s Law

  1. Poor Penelope, hope she is feeling better soon but don’t rush her. I think Penelope likes to do things at her own pace and she will let you know when she is ready to move back to formula.

    Thoughts and prayers are with you

    Love Anne Marie

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